|
Post by Deceived Wife on Apr 22, 2014 11:50:46 GMT
Hi All,
Yesterday the news came that hubby did not make the transplant list. They say his meld is less than what his doctors calculated by 3 points and therefore he does not meet criteria for the list at this time; however, when asked about the time frame he has they said 9-12 months.
Last week we went to the VA for a Pallative Care assessment and we asked about being listed with the VA so he could be double listed; with this news, I assume he can't be listed with the VA either.
At this point we are not sure what to do. Whether the score be a 17 or 20 (as they said a few weeks ago) it doesn't change how he feels or his pain level.
Is there someway to get the meld down? I can't seem to find an answer to that.
|
|
Not the right forum
Guest
|
Post by Not the right forum on Apr 23, 2014 11:00:02 GMT
You will not find the answers to your questions on this forum. Best to go back to HW. I'm not familiar with your husband's situation but I can say that until his MELD score reaches somewhere in the low 20's or he is found with liver cancer, you will continue Ion this path.
|
|
|
Post by Deceived Wife on Apr 23, 2014 11:55:42 GMT
Thank you for your input "Not the right forum". I do view the HW forum daily. However, this forum is for caregiver support which is not truly available at HW.
|
|
Not the right forum
Guest
|
Post by Not the right forum on Apr 23, 2014 15:02:54 GMT
I understand - but you are asking questions that are not 'caregiver' specific - you need info about MELD scores and transplant.
|
|
|
Post by Josie on May 7, 2014 19:40:29 GMT
Is anyone here? I have been reading & learning, but now no one posts.
|
|
|
Post by Can I help? on May 8, 2014 0:58:24 GMT
Josie - if you're looking for help - try Healing Well (Hep C) forum.
|
|
|
Post by Gone on May 8, 2014 1:00:39 GMT
One of the moderators took her oil man and is gone with the wind!
|
|
|
Post by Deceived Wife on May 8, 2014 15:34:10 GMT
No one has taken their "oil man" nor is anyone gone with the wind. Guest, if you don't like this forum, feel free not to visit.
|
|
|
Post by needhelp on May 26, 2014 3:11:20 GMT
What happened to onomatopoeia?
|
|
|
Post by Gone on May 29, 2014 0:16:53 GMT
Apparently she has decided not to moderate this forum anymore. It was all about her. It was never about helping others.
|
|
|
Post by needhelp on May 31, 2014 3:44:11 GMT
Exactly...
|
|
|
Post by needhelp on Jul 12, 2014 23:06:59 GMT
Not on HW any more. What happened to your husband?
|
|
|
Post by needhelp on Aug 23, 2014 14:13:35 GMT
Time to blow this piece of crap out of the water...
|
|