Post by tonystrak on Dec 28, 2017 9:55:49 GMT
Hi,
Do not get me wrong I have plenty with hospice and friends and family but I still feel very much alone on this journey. My husband was diagnosed with ESLD two years ago. He is not eligible for a transplant due to his age (75) and the fact that he has Parkinsons and diabetes. We are on all the meds. everyone else is talking about the lactulose, Xiafaxan, propananol, lasix and a few others. He has ascites and varices. At the begining he almost died from esphogeal varices but 11 bands later he is still with me. Over the past month he has shown a real decline, that's when I asked for hospice. I really want to keep him home and it has been a real struggle keeping my job, paying for a caregiver and taking care of him. Overall, I think I am doing pretty well but every now and then, Like now it catches up with me and I go to that dark place of wondering how much longer this will go on, and of course I feel guilty about that. He sleeps most of the time and the only good news is he still likes to eat and he is in no pain. I can only afford to have the caregiver so much and so most of this is on me.
Thanks!
For more details:
Company Overview Video
Do not get me wrong I have plenty with hospice and friends and family but I still feel very much alone on this journey. My husband was diagnosed with ESLD two years ago. He is not eligible for a transplant due to his age (75) and the fact that he has Parkinsons and diabetes. We are on all the meds. everyone else is talking about the lactulose, Xiafaxan, propananol, lasix and a few others. He has ascites and varices. At the begining he almost died from esphogeal varices but 11 bands later he is still with me. Over the past month he has shown a real decline, that's when I asked for hospice. I really want to keep him home and it has been a real struggle keeping my job, paying for a caregiver and taking care of him. Overall, I think I am doing pretty well but every now and then, Like now it catches up with me and I go to that dark place of wondering how much longer this will go on, and of course I feel guilty about that. He sleeps most of the time and the only good news is he still likes to eat and he is in no pain. I can only afford to have the caregiver so much and so most of this is on me.
Thanks!
For more details:
Company Overview Video