|
|
Post by retired12 on Feb 21, 2014 7:13:37 GMT
Well my caregiver, being my wife has done little to nothing for me. I was diagnosed was hep c, cirrhosis of the liver decomposated, December 2011. In October 2013 I was diagnosed was hcc. The tumor was 1.5cm. Now Jan 2014 the tumor has grown to 2.1 cm. The only thing she has done was drive me to my appointments. I quit drinking Jan 1, 2012, quit smoking in Oct 2013. I am on the transplant list with meld score 22. My wife has done no research on my condition. Doesn't ask any questions to the doctors, mixes my medicines up.
We have custody of my two granddaughters (10 and 13), since I know my time is limited, I have started the process to adopt both of them, so when I'm no longer around, my social security will be there to take care of them. We have had them for the last 7 years. So I just feel like they are my daughters.
D W, I know you said that this forum was for caregivers only, but I hope you won't mind me venting here.
Thanks Ron
|
|
|
|
Post by Deceived Wife on Feb 21, 2014 12:51:47 GMT
It's ok, Ron. Welcome. Please understand that this forum is for caregivers..... but if you need a safe place to vent... you're welcome. Just please do not be offended by anything caregivers may have to say.
May I ask you a few questions? I suspect you both have your hands full, raising 2 children. That's a great idea to adopt them so they can get SS benefits.
But why is it you feel that your caregiver does nothing for you other than drive you to appointments? Does she cook, clean, take care of the kids, etc...?
You mentioned mixing of your meds. What do you think that is about? And are you able to take care of your meds yourself?
My husband manages his own meds..... i used to do that for him, but it is a "chore" he wanted control of. Perhaps he caught on that at times I was slipping lactulose in some beverages when I felt he needed a little extra.
DW
|
|
|
|
Post by Onomatopoeia on Feb 21, 2014 23:58:24 GMT
Retired12,
I'm sad if your caregiver is mixing meds. What stage are you? Are you sure Hepatic Encephalopathy hasn't clouded your judgement? If this CG is truly mixing them up - report it to your doctor. DOCTORS have a lot of power and esteem. They have a strong hold and a line of defense when needed. Officials or police aren't reliable. Doctors are the closest to reliable available. Besides, police can mmss up your life if the problem is just a figment of your confusion due to the imminent hepatic encephalopathy, (HE).
Please give us more info. The bottom line is this... it was reckless living that got us where we are. It takes accountability on both sides. No caregiver is an angel by default. Neither is a patient. It would be no surprise if your CG is messed up, likewise it would be no surprise if the patient were the same. We aren't here to play Pretend. We are here for LIFE. Our professionals who hold lives in their hands are Not Slow or stupid. We MUST trust them.
Please stay in touch. IF you are being treated as such as in your thread, you are being neglected or abused!
|
|
|
|
Post by Onomatopoeia on Mar 1, 2014 0:17:19 GMT
Retired,
Wow! I'm impressed and glad to see you are making preemptive steps to care for those who depend upon you. I'm sorry that your caregiver isn't involved much. I'd certainly take care of that with contracts, or switching caregivers. Hire someone if you must! What will happen when you depend upon this person. Both parties have to be committed. Let us know what you do and how you find to solve this serious issues.
|
|
|
|
Post by maybee on Mar 1, 2014 20:10:23 GMT
Retired, are you still around? Have you found any help yet?
|
|
