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Post by Deceived Wife on Feb 20, 2014 13:46:00 GMT
Please keep their family in your thoughts and prayers.
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Post by Onomatopoeia on Feb 22, 2014 1:21:19 GMT
Thank you. I stepped back and told the truth so the doctors could do what they know how to do. Heal. I feel rested. Thank God. He hates the hospital. I Love it. He always comes home with a clearer head. Thank you.
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Post by Deceived Wife on Feb 22, 2014 15:47:22 GMT
Thinking of you both. Keep us posted. Hugs
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Post by Onomatopoeia on Feb 23, 2014 4:04:53 GMT
He's out of the hospital. He was set up on hospice at home. If he continues living like he is, he's not expected to live 6 months. He can qualify for a transplant Only With 6 months documented sobriety and random blood tests for substances and alcohol. Hospice will see that he does not double up on his ambien.
He has become so mean with the HE over time. I don't know which is worse, meanness or chaos in motion. When his ammonia is high he is so sweet, but dangerous to himself. When it's low he's just short on memory and an angry butthead.
I've thought of taking him international for a transplant. He's agreeable to that. I just hope I can make it that far. He's ungrateful and behaves entitled to my duty and sacrifice. Why do we do this? Love.
He makes messes of finances, records, meds, the house, his body, and pretty much everything. This is a difficult road. A month must take a year off my life.
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Post by Deceived Wife on Feb 23, 2014 16:18:09 GMT
My husband is not talking to me today, not sure how long this will last. He say's I don't "smell" like myself. I have no idea what that is supposed to mean; but whatever.
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Post by Onomatopoeia on Feb 24, 2014 6:16:50 GMT
Maybe his nose.is stopped up. Maybe he can smell inside.his own cranium. I'm just kidding. But, is he getting confused? Is he cleaning himself properly?
My husband has been wetting himself and creating quite a scent that wreaks. (Shrugging)
If he isn't getting exercise he may be slipping on personal hygiene and hallucinating that's it's you rather than he who smells like themselves.
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moon head
New Member
aggressive hostile
Posts: 19 
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Post by moon head on Feb 25, 2014 0:31:51 GMT
I am sorry that you will lose your spouse to this terrible disease. It takes courage to fight.
Wait a minute - I have to check you on this. He's agreeable to go for an international transplant but he can't stop drinking. Love or not - do you not see how idiotic that sounds. If you EVEN think about that - You ARE an enabler. Okay, let's go at it from a different angle. What if you were a spouse of a patient who has been compliant through the whole procress and the liver that could have been given to your spouse to save his life was given to a non-compliant alcoholic? On your plane ride overseas to this imaginary international transplant - who's carrying the alcohol - you or him?
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Post by Deceived Wife on Feb 25, 2014 3:43:55 GMT
I also know that I too was an enabler. Not any longer. I kept my mouth shut at important Dr. Visits when I knew he was lying just to keep the peace. I no longer do that, so now I'm no longer allowed to attend. He can't eat red meat, I wont buy it or cook it, but he does. When he seem off i used to suggest a trip to the ER..... it always caused WWIII, so now I know I have to just wait for him to either go off the deep end or a coma then call 911.
I found a stash of candy in his closet.... he keeps it everywhere and he is diabetic. I'm at my wits end and have resolved myself to he will do what he wants and I will just have to pick up the pieces so long as I'm still his wife. The length of this marriage is yet to be determined as I am filing for divorce.
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Post by Deceived Wife on Feb 25, 2014 3:50:10 GMT
Maybe his nose.is stopped up. Maybe he can smell inside.his own cranium. I'm just kidding. But, is he getting confused? Is he cleaning himself properly? My husband has been wetting himself and creating quite a scent that wreaks. (Shrugging) If he isn't getting exercise he may be slipping on personal hygiene and hallucinating that's it's you rather than he who smells like themselves. His personal hygiene is fine.... though I do find urine all over the toilet in the master bath. It's like he is peeing in the dark or something. He is talking to me again so I guess I no longer smell. I swear I don't know what to do. None of it is enough to warrant forcing him to the hospital yet none of it is "normal". Expecting the dog to talk to him, emptying the waste basket made the toilet flush better, I smell so he won't talk to me. |
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Post by Onomatopoeia on Feb 25, 2014 3:53:55 GMT
It's sad but I wait for mine to get worse so the hospital can clean him up. When they are out of their minds it is a rough place. Bide your time. He will get more crazy and you can intervene then.
I'm sorry he's giving you a rough time. I hope you get a break soon. Take care of yourself.
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Post by needhelp on Feb 25, 2014 4:36:06 GMT
My brother has been nice and peaceful so far, but even if he turned bad, I couldn't let him go. I guess it's different when you're related by blood rather than marriage. John was always there for me, and now he needs my protection and love.
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Post by Deceived Wife on Feb 25, 2014 4:43:06 GMT
My brother has been nice and peaceful so far, but even if he turned bad, I couldn't let him go. I guess it's different when you're related by blood rather than marriage. John was always there for me, and now he needs my protection and love. I don't think it's whether it is by blood or marriage, I think it's the person and how they treat their caregiver. I've tried to do everything I can for my husband, went as far as inquiring about being a living donor in Sept. I saved his life in June. He treats me like crap. He's angry and I'm his punching bag. |
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moon head
New Member
aggressive hostile
Posts: 19
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Post by moon head on Feb 25, 2014 4:54:00 GMT
Deceived Wife: Divorce seems the only way to me in your case.
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Post by Deceived Wife on Feb 25, 2014 4:56:37 GMT
Deceived Wife: Divorce seems the only way to me in your case. Sadly, I agree. It's horrible to have to chose to leave your spouse when they need you the most. |
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Post by Deceived Wife on Feb 25, 2014 5:04:39 GMT
My brother has been nice and peaceful so far, but even if he turned bad, I couldn't let him go. I guess it's different when you're related by blood rather than marriage. John was always there for me, and now he needs my protection and love. Your brother just could remain nice and peaceful towards you. Not all are horrible to their caretakers, but many are. My grandfather was a beast to my grandmother when he suffered all of his various illnesses. He wanted to die and made it clear to anyone and everyone who would listen. My Grandmother, however, was an angel after her diagnosis of Dementia/Alzheimers. I think a lot has to do with their personalities prior to the illness. With the exception of the fist few years of our relationship, my husband has always been quite difficult. |
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